UKIST would like to say a massive thank you to our fab four – Kylie, Kerry, Joe and Amy – who all completed the LLHM on Sunday 6th April on behalf of the charity. Our trustees Sue and Louisa had a great time manning the cheer station. Here are the stories of why our runners […]
Fundraising
Fabulous fundraisers – the Northern Traverse
Anthony Bretherton decided to take on the gruelling Northern Traverse challenge to raise money My youngest son Sam was diagnosed with infantile spasms (which is an early form of epilepsy) at just 5 months old, experiencing multiple seizures each day. This condition often goes undiagnosed, leading to severe developmental issues. Thanks to the incredible care […]
Amazing Alice!
We would like to extend a massive thank you (and our total admiration) to our trustee Alice, who has completed her challenge to run a half marathon every month in 2024 to raise money for UKIST. So far Alice has raised £1950, which with gift aid added brings the total to more than £2400. Anyone […]
A massive thank you to our fabulous fundraisers!
UKIST would like to say an enormous and heartfelt thank you to Steph Smith and her amazing team of fundraisers, who have raised over £10,000 by walking a marathon distance and holding a ‘rock of the pops’ gig in honour of Steph’s son, Presley. Steph said “At the age of 7 weeks old Presley started […]
Epilepsy awareness month Fun run launches 1st November!
Tickets for our Fun Run go on sale 1st November at 6:00am! This is a virtual event that you can complete anywhere you choose. Simply purchase your ticket, complete your distance and send us a screenshot from a suitable fitness/tracking app as evidence to receive your medal. We are also hosting optional leaderboards for those […]
Our fabulous fundraisers!
UKIST are constantly humbled by the generosity of the wonderful people who have had some contact with the charity and then volunteer to raise funds for us. We’ve had a busy couple of months with multiple events taking place so we’d like to thank…. Jake and Stuart who attempted the gruelling South Coast 100km […]
Marvellous marathon runners!
UKIST would like to say a huge thank you to Ben and Emily our London Marathon 2023 finishers! We are so grateful for your efforts and fundraising – between them Ben and Emily raised over £3000 for the charity. If you are inspired by our fabulous fundraisers and would like to attempt a challenge for […]
UKIST grant helps Jaxon to swing!
We received a lovely testimonial from Emma, a member of our support group: “Just over nine months ago we were lucky enough to be awarded a grant by UKIST to fund a GoTo seat for my lovely little boy Jaxon who has battled IS/epilepsy for over 15 months now without ever really gaining control of […]
UKIST granted national lottery community funding!
We’re extremely pleased to share some exiting news! UKIST has secured some much-needed funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund 🌟 One of UKIST’s core ambitions is to provide a network of support to parents and carers with children affected by infantile spasms. In this Covid19 pandemic, we […]
Fantastic fundraisers dancing for UKIST!
We would like to say a massive thank you to Dayna Teehan, her beautiful daughter Penny and the staff and children of Small Steps Montessori Nursery and Tigers Childcare Preschool Ongar who held a series of events during ISAW including a funday, danceathon, breakfast and facepainting and raised a massive €1230 for UKIST. […]
