Fundraising

Join our purple army and help us fight for a better future for our little warriors!

If you would like to support UKIST by taking part in a sporting challenge or organising your own fabulous fundraising event, we’d love to hear from you.

We can provide you with running vests, sponsorship forms and UKIST literature. Just get in touch using the form below, tell us about your fundraising event or activity, and let us know what you need. If you need some ideas for fundraising activities, we can help with that too!

Check out our news section for success stories from our supporters, and see below for upcoming events you can get involved in.

Alternatively, if you’d prefer to simply make a donation to UKIST, just use the link below.

Donate now

Ready to fundraise? Get in touch!

Fundraising success story

Chris Climbs Kilimanjaro

I have just returned from trekking up mount Kilimanjaro to raise funds for Epilepsy Research UK and UKIST (UK Infantile Spasms Trust). Both charities are very close to my heart because at 7 months old my son Edward was diagnosed with Infantile Spasms (IS) – a rare form of epilepsy that occurs in young children. Thanks to a new research study Edward responded very quickly to the recommended treatment and is now a cheeky little 2 year old and remains seizure free.

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Upcoming events

Ultra Challenge Series


We are now registered as a listed charity with Ultra Challenges. If you would like to take part and help us raise awareness, click on the link below to get involved.

Ultra Challenges

We have Samia doing Coast2Coast, Jenny doing Cotswolds, Clare doing Lakes and Michelle doing Peak District - Please sign up and tackle one of these fabulous challenges and help raise the awareness of Infantile Spasms

We will be dropping in updates to our News section.

IS Awareness Week

ISAW 2019
1-7 December 2019

The international Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 and here at UKIST, we’re already busy making plans! We will be getting involved in the week with a range of activities designed to help raise awareness of the symptoms and impact of infantile spasms.

During ISAW 2018, the Infantile Spasms Action Network introduced the #ISAW2018 hashtag. With the mnemonic as the centrepiece for 2018 awareness, we can report that reached 2.3 million social media users.

Infantile Spasms Awareness Week 2019 promises to be even bigger and better, so watch this space!