UKIST are proud to be participating in the Aviva Community Fund again in 2019. This year, the funding is on an “all or nothing” basis and we need your help! One of our core ambitions is to improve awareness of the symptoms of infantile spasms amongst the medical profession, because without early diagnosis the development […]
News
Our November warrior – Kayden’s story
Kayden’s story has been written by his mum Stephanie-Leigh. This is our little warrior’s story. Kayden is only ten months old and has already been through so much. I started to notice little head drops when Kayden was four months old. We were initially turned away by the doctors saying he was just gaining […]
The Summit Club – They did it !!
We would like to say a massive THANK YOU to Sacha Rehmat, Adrian Tisi, Stuart Taylor, Robert White and Chris Sidwell Smith – aka The Summit Club from Palo Alto Networks who on Wednesday 18th September took on the mammoth challenge of climbing Ben Nevis.for UKIST. We cannot thank these guys enough! Every penny raised […]
September Warrior – Maia
I’d like to introduce you to my beautiful Maia. She is my much longed for 3rd baby (although she has recently also become a big sister herself!). She was born at 39 weeks by elective c-section and it was a lovely, complication free birth. From day 1 she was such a content, happy little girl […]
August warrior – Charlie’s story
At 10 weeks old our son Charlie was diagnosed with infantile spasms and West Syndrome, but after numerous tests and scans no cause could be found. He began treatment with prednisolone and vigabatrin which really helped and he was initially spasm free with a clear EEG. Apart from the side effects of the steroid with his puffy face and gaining weight faster […]
Thank you to Brook Foods
Brook Food Processing Equipment 25th Anniversary charity donations hit £10,000 with June’s donation going to UKIST. As Brook Food reach the half way point of their silver anniversary celebrations, the chosen charity for June was the UK Infantile Spasms Trust. Brook Food Processing who pride themselves on being a family run business, for the second […]
July warrior – Jaxon.
Jaxon’s story – as told by his mum Emma, highlights the difficulty in getting swift action when infantile spasms are suspected, even in children known to be at increased risk of developing them because of an underlying condition. UKIST supports worried parents like Emma to advocate for rapid diagnosis and treatment for their children. One […]
UKIST at RCPCH Epilepsy conference
UKIST sent two representatives to the Royal College of Paediatrics and Child Health Epilepsy conference in London. We attended last year as delegates, this year we were presenting a poster in their exhibition and handing out our patient booklets to neurologists, paediatricians and epilepsy nurses. We got fantastic feedback and made lots of new contacts. […]
Thank you to Dayna, Faye and Penny!
Dayna, Faye and Penny organised a nursery fun day that raised over £160 for UKIST! We are so grateful to our supporters, big and small, for their efforts to raise funds and awareness. […]
UKIST warrior of the month – June
Our ‘warrior’ this month is the lovely Tristan, his story is told by his dad Adrian, who is now one of our network of regional parent ambassadors. It illustrates why our focus at UKIST is on raising awareness within the medical profession to speed up diagnosis – as delayed diagnosis affects long term outcomes. […]
