UKIST would like to say an enormous and heartfelt thank you to Steph Smith and her amazing team of fundraisers, who have raised over £10,000 by walking a marathon distance and holding a ‘rock of the pops’ gig in honour of Steph’s son, Presley. Steph said “At the age of 7 weeks old Presley started […]
Fundraising
Epilepsy awareness month Fun run launches 1st November!
Tickets for our Fun Run go on sale 1st November at 6:00am! This is a virtual event that you can complete anywhere you choose. Simply purchase your ticket, complete your distance and send us a screenshot from a suitable fitness/tracking app as evidence to receive your medal. We are also hosting optional leaderboards for those […]
Our fabulous fundraisers!
UKIST are constantly humbled by the generosity of the wonderful people who have had some contact with the charity and then volunteer to raise funds for us. We’ve had a busy couple of months with multiple events taking place so we’d like to thank…. Jake and Stuart who attempted the gruelling South Coast 100km […]
Marvellous marathon runners!
UKIST would like to say a huge thank you to Ben and Emily our London Marathon 2023 finishers! We are so grateful for your efforts and fundraising – between them Ben and Emily raised over £3000 for the charity. If you are inspired by our fabulous fundraisers and would like to attempt a challenge for […]
UKIST grant helps Jaxon to swing!
We received a lovely testimonial from Emma, a member of our support group: “Just over nine months ago we were lucky enough to be awarded a grant by UKIST to fund a GoTo seat for my lovely little boy Jaxon who has battled IS/epilepsy for over 15 months now without ever really gaining control of […]
UKIST granted national lottery community funding!
We’re extremely pleased to share some exiting news! UKIST has secured some much-needed funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community Fund ? One of UKIST’s core ambitions is to provide a network of support to parents and carers with children affected by infantile spasms. In this Covid19 pandemic, we […]
Fantastic fundraisers dancing for UKIST!
We would like to say a massive thank you to Dayna Teehan, her beautiful daughter Penny and the staff and children of Small Steps Montessori Nursery and Tigers Childcare Preschool Ongar who held a series of events during ISAW including a funday, danceathon, breakfast and facepainting and raised a massive €1230 for UKIST. […]
Christmas wreaths for a good cause
UKIST would like to say a massive thank you to Diane Hodgetts who organised a wreath-making workshop to raise funds for UKIST in honour of her grandson Harry. Harry had infantile spasms when he was 3 months old and although he is spasm free at 3 years old, he continues to have various developmental issues […]
Infantile Spasms Awareness week 2019 – our focus on medical education
Our partners at the Infantile Spasms Action Network developed the mnemonic STOP to raise awareness of the importance of swift diagnosis for IS – See the signs – Take a video – Obtain a diagnosis – Prioritise treatment. We know that one of the major barriers to obtaining a diagnosis and getting rapid treatment is […]
UKIST are crowdfunding for improved GP epilepsy education – we need your help!
UKIST are proud to be participating in the Aviva Community Fund again in 2019. This year, the funding is on an “all or nothing” basis and we need your help! One of our core ambitions is to improve awareness of the symptoms of infantile spasms amongst the medical profession, because without early diagnosis the development […]