We are recruiting!

To support the growth and ambitions of UKIST, we’re excited to announce the expansion of our Board of Trustees! UKIST was founded in 2017, and in just 3 years we’ve grown from strength to strength. We’re making great progress towards improving awareness, we’re helping more than 1100 members in our support group, and we continue […]

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January warrior – Arthur’s story

This month’s warrior is Arthur – his story is told by his dad Andrew. After a healthy pregnancy, our son, Arthur, was born at term by emergency Caesarean, following unexplained HIE (severe oxygen deprivation). He was given a blood transfusion, resuscitated and transferred to NICU where he was given hypothermic cooling for 72 hours to […]

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The Summit Club – They did it !!

We would like to say a massive THANK YOU  to Sacha Rehmat, Adrian Tisi, Stuart Taylor, Robert White and Chris Sidwell Smith – aka The Summit Club from Palo Alto Networks who on Wednesday 18th September took on the mammoth challenge of climbing Ben Nevis.for UKIST. We cannot thank these guys enough! Every penny raised […]

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September Warrior – Maia

I’d like to introduce you to my beautiful Maia. She is my much longed for 3rd baby (although she has recently also become a big sister herself!). She was born at 39 weeks by elective c-section and it was a lovely, complication free birth. From day 1 she was such a content, happy little girl […]

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August warrior – Charlie’s story

At 10 weeks old our son Charlie was diagnosed with infantile spasms and West Syndrome, but after numerous tests and scans no cause could be found. He began treatment with prednisolone and vigabatrin which really helped and he was initially spasm free with a clear EEG. Apart from the side effects of the steroid with his puffy face and gaining weight faster […]

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Thank you to Brook Foods

Brook Food Processing Equipment 25th Anniversary charity donations hit £10,000 with June’s donation going to UKIST. As Brook Food reach the half way point of their silver anniversary celebrations, the chosen charity for June was the UK Infantile Spasms Trust. Brook Food Processing who pride themselves on being a family run business, for the second […]

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July warrior – Jaxon.

Jaxon’s story – as told by his mum Emma, highlights the difficulty in getting swift action when infantile spasms are suspected, even in children known to be at increased risk of developing them because of an underlying condition. UKIST supports worried parents like Emma to advocate for rapid diagnosis and treatment for their children. One […]

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AGM 2019 Minutes

Our third UKIST AGM was held on Saturday 4th May 2019. UKIST was set up by a group of UK based parents whose children had suffered or were suffering with Infantile Spasms. All Trustees are volunteers who dedicate their time to the charity around their working and home lives with the united goal of wanting […]

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