As UKIST celebrates it’s ninth birthday, we are proud to reflect on what has been achieved in the past year and share some of our plans for the year ahead. Please use the link to view our full annual report. UKIST newsletter 2026 […]
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EPIC research project update
UKIST are a partner in the EPIC project (enabling early and equitable diagnosis of epilepsy in infants in the community) based at Edinburgh University. The first phase of the project – a survey of families with a child under 2 years of age with recent experience of EEG testing – is now ready to launch, […]
Our September warrior Hugo – a story of resilience
On December 19th, 2023, our beautiful baby boy Hugo, was born. His arrival wasn’t without complications, after a delayed pre-eclampsia diagnosis, I was induced a week later. I spent four days on the induction ward followed by 22 hours of labour before Hugo entered the world. Our beautiful little boy immediately endured 30 minutes of […]
Our August warrior – Rupert – deeply loved and fiercely celebrated
Rupert’s story has been written by his mum, Abby I chose the title because I think the phrase that Abby used will resonate with so many of the UKIST families. Jenny It’s strange how the moments you think will stay with you forever are often the ones your mind quietly lets go of – not […]
Our May warrior Ellie – infantile spasms and HIE
Ellie’s story is shared by her mum, Kim This is my amazing little warrior Ellie, she’s just turned 1 in April, a milestone we weren’t sure she would reach at the beginning. At birth Ellie suffered a H.I.E event (HIE stands for Hypoxic-Ischemic Encephalopathy, a brain injury caused by a lack of oxygen and blood […]
Fabulous fundraisers – the London Landmarks half marathon
UKIST would like to say a massive thank you to our fab four – Kylie, Kerry, Joe and Amy – who all completed the LLHM on Sunday 6th April on behalf of the charity. Our trustees Sue and Louisa had a great time manning the cheer station. Here are the stories of why our runners […]
