August warrior – Charlie’s story

At 10 weeks old our son Charlie was diagnosed with infantile spasms and West Syndrome, but after numerous tests and scans no cause could be found. He began treatment with prednisolone and vigabatrin which really helped and he was initially spasm free with a clear EEG. Apart from the side effects of the steroid with his puffy face and gaining weight faster […]

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UKIST at RCPCH Epilepsy conference

UKIST sent two representatives to the Royal College of Paediatrics and Child Health Epilepsy conference in London. We attended last year as delegates, this year we were presenting a poster in their exhibition and handing out our patient booklets to neurologists, paediatricians and epilepsy nurses. We got fantastic feedback and made lots of new contacts. […]

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