Our third UKIST AGM was held on Saturday 4th May 2019. UKIST was set up by a group of UK based parents whose children had suffered or were suffering with Infantile Spasms. All Trustees are volunteers who dedicate their time to the charity around their working and home lives with the united goal of wanting to support other families affected by the rare condition. All meetings and AGMs are 100% funded by the volunteers and all plans for the upcoming year are discussed and agreed on as a group. The report aims to give our supporters a framework for the next 12 months of how we plan to use monies raised by our amazing community – we are always keen to hear your thoughts and ideas – Best Regards -Samia, Jenny, Michelle, Amy, Clare, Jade, Lisa and Belen x
