This month’s warrior is Seren – her mother Cat shares their progress as they have reached the milestone of four years after her diagnosis. We’d like to extend a big thank you to Cat and to others like her who remain in our support group years after their diagnosis to offer support to other families. […]
Warrior posts
January warrior – Rachel’s story – three years on
Our daughter Rachel is now 3 ½ years old, and on January 3rd 2021 it will be 3 years to the day since, as a 6 month old, we noticed her starting to do very odd head movements. The 3rd January 2018 was the first day the schools were back, but our 5 year old […]
UKIST’s October warrior – Jonjoe’s story
Jonjoe and his twin brother Jamie were born prematurely at 28 weeks by emergency C-section. Jonjoe was the bigger, stronger twin at a whopping 2lb10oz and pretty much sailed through NICU. He was the twin we thought we didn’t have to worry about! It soon became apparent to me that there was something not quite […]
