Grant Application

UK Infantile Spasms Trust Grant Scheme

The UK Infantile Spasms Trust (UKIST) grant scheme is made possible by the generosity of our fundraisers and kind donors; and we thank them for making such a positive difference to the lives of children and families affected by infantile spasms (IS).  

Our grant scheme is currently open.

UKIST will consider grant applications up to the value of £1000 as follows:  

• Special needs equipment – up to £1,000 
• Therapy and activities that will assist children in their recovery or development – up to £500  
• Financial hardship or Mental Health concern resulting directly from a diagnosis of infantile spasms – up to £500  

Families are invited to apply using the form on the UKIST website with an explanation of the proposed costs, and how this is expected to benefit your IS warrior.  

Supporting documents, as detailed in the further information below, can be submitted separately to sue@ukinfantilespasmstrust.co.uk.

**Note we cannot process an application without the relevant supporting documents** 

Applications for UKIST grants will be reviewed by the Board of Trustees on a monthly basis.

Further information

Before making a grant application, please take the time to read our terms and eligibility criteria in detail.  

1. Applications are only accepted from current members of our UKIST community.  
2. Your child must have received a diagnosis of infantile spasms; and a copy of the diagnosis letter or a clinic letter listing the diagnosis, is required along with your grant application 
3. Your child must be living in the United Kingdom (England, Scotland, Wales & Northern Ireland) or the Republic of Ireland. 
4. For equipment and therapy grants, there is no means testing involved however, it is expected that you will have approached the NHS to fund the required item in the first instance.  
5. Consideration for financial hardship grants require evidence of means tested benefit entitlement(s) (as specified by the Trustees) typically, evidence of universal credit (UC) or similar. 
6. Limited funding is available therefore we have a limit in total of £1,000 per family. If a large grant for a piece of equipment is awarded you are not eligible to reapply in future. 
7. Endorsement - supporting evidence from someone who works with your child in a professional capacity (e.g. occupational therapist, doctor, etc) 
8. Assessment - the Board of Trustees will acknowledge receipt of applications, although you may not receive a quick response, we endeavour to reply within one week.
9. Trustees review applications and the Trustees decision is final.  We will write to you to confirm the outcome. Applications submitted without the required supporting information will not be considered. 
10. If successful, UKIST will order and pay for products / services direct to suppliers.  
11. Grants must be actioned within two months of confirmation; otherwise, funding will be withdrawn.  
12. Equipment - our expectation is that when equipment has been outgrown or has outlived its usefulness, it is offered back to the charity to either pass on to another family or to be sold with the proceeds donated back to UKIST. By accepting our help to purchase this equipment you agree to abide by this condition.  
13. The grant scheme is dependent on UKIST fund availability and may close, unannounced (as necessary).  

• •  A letter of support is required with your grant submission for equipment 

• •  If you are requesting funding for a private physio or service from a person or company you will need to provide their full name, company name and company number to enable UKIST to perform due diligence checks on whether the service provider is suitably registered and qualified