UKIST autumn grants awarded

UKIST are delighted to announce that we have been able to award a series of grants totalling £3551 to help seven families with equipment or therapies for their children affected by infantile spasms. This is the second round of grants awarded in 2018, and one of our previous recipients had this to say about how […]

Read More…

Hard won victory

Penny’s mum Dayna tells us about their battle “Our IS journey hasn’t been easy, to say the least. Penny was diagnosed at 9 weeks old and we quickly found out that all the typical meds used to treat infantile spasms weren’t going to work for her. The cause of her seizures was a cortical dysplasia […]

Read More…