September is an exciting (and anxious) time of year for many of our families as their children start a new school or nursery or move to the next step. This feels like a milestone for all families but particularly for children who have faced such huge challenges in their early years. This September we will be celebrating how far they have come and adding to the posts here as the precious ‘first day’ photos are shared.
Addie is going into Year 1 after an incredible reception year at her specialist school, her teachers described her as “constantly on the cusp of something incredible” and they aren’t wrong. Addie has learnt to engage in the school routine, has learnt to sign some words and has thrown herself into learning, she found a love for face painting and anything creative and despite being non verbal has leant to sing along to her favourite songs, I’m so excited to see what her next year brings.
Tia is starting reception at an SEN school. We are all really excited for her to start as we know she will thrive even more! She has an EHCP and 3 care plans in place. The school have already been in contact a lot so they can prepare for when Tia starts and have an idea of her likes/dislikes. Tia started with Infantile Spasms at 3 month old which progressed to severe complex epilepsy. She failed multiple AED’s and started the keto diet as an emergency inpatient. On the 17th of this month she will be 21 months seizure free and almost off all AED’s. Recently they found Tia has a super rare genetic condition which no one really knows much about however a diagnosis doesn’t define Tia and she will make her own journey.
